About AutismUp
Autism Support Services in Rochester, NY – From Diagnosis Through Adulthood
Founded in 2004 by parents of children with autism, AutismUp is the leading nonprofit autism support organization in the Greater Rochester area. We provide lifespan services, programs, and support for individuals with Autism Spectrum Disorder (ASD) and their families.
Our Story: Built by Families, for Families
Rooted in Love. Driven by Purpose. Building the Future.
What started as a conversation between four moms in a coffee shop has grown into a movement. With over 4,000 member families and professionals, AutismUp is a trusted resource and a voice for those navigating the autism journey.
What We Do
We offer comprehensive autism services across all life stages:
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Skill-building programs (social, sensory, readiness, life skills)
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Navigation and family support services
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Learning Labs and micro-business job training
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Community training and advocacy
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Autism-inclusive events and recreation
Serving 4,000+ individuals and families annually in Rochester and surrounding areas.
Our Approach
We believe every great climb begins with a step up.
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Personalized Support: Every individual with autism is unique. Our programs reflect that.
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Parent-Led Innovation: We've walked this path. We’re creating what families truly need.
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Inclusive Learning: Our Multi-Sensory Learning Environment provides a safe, supported space to grow and thrive.
Our Mission
To support individuals with autism and their families by expanding and enhancing opportunities to improve quality of life.
Our Vision
To be the premier model of community support and inclusion for individuals with autism.
Our Guiding Values
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Family-Driven — Our lived experience guides everything we do.
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Boldly Innovative — We’re trailblazers, creating what doesn’t yet exist.
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Uncompromising — We never settle for “good enough.”
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Empowering — We uplift the entire family.
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Accessible & Inclusive — Everyone belongs here.
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Relentlessly Committed — We’re in this for the long haul.
Why It Matters
1 in 31 children is diagnosed with autism. Lifespan services are limited—but AutismUp is filling the gap. Our own children are growing up. We’re building the future they deserve.
Join Us
AutismUp thrives because of people like you. Whether you're a parent, caregiver, professional, donor, or volunteer—there’s a place for you here. Help us continue the climb:
Have questions or want to learn more? Contact us.
Together, we are unlocking potential and creating unlimited possibilities for individuas with autism—and building a future that includes everyone.