Autismup Events

Housing Analysis Survey Sessions

Build Up ROC Housing Initiative

Survey sessions end June 25th in-person and virtually. Claim your seat at the table and let your voice be heard!
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Are you a...


Family Member?

Local Leader?

Invested Community Member?

Join the Build Up Roc Housing Initiative and become a "Housing Hero!" This unique opportunity offers self-advocates, families, nonprofits, local leaders, and community members a "seat at the table" to address the housing crisis in Rochester. Help us collect crucial data needed to create a roadmap to more viable housing options for people with autism and other developmental differences.

This is a call to action.

Let your voice be heard.

Step 1: Register for a survey session. TIME SENSITIVE: Sessions end June 25th. Consider printing these before your session starts!

Step 2: Educate and Empower yourself regarding viable housing models for the A/I/DD community.

Step 3: Complete the Survey with a particular person with IDD in mind. You can fill out more than one survey if you have more than one person in your life that you would like represented in our data. Please assist self-advocates (as needed) so they can also fill out the survey from their perspective.

  • Preferred Option, Expanded:

  • Plain Language:

10 survey sessions will be held from June 4th to June 25th in-person and virtually. Learn about viable housing models and be informed when you complete your survey. Each session will run approximately 90 minutes depending on the needs of the participants. Our goal is to survey no fewer than 100, but ideally 500, diverse perspectives from individuals and families within our community.

To participate, select the session you will attend from the list below, and register using this link:

We don't know what we don't know, yet.

Get educated and be empowered.

Data opens doors! Many IDD statistics are outdated and no longer represent Rochester's diverse needs. To change this, AutismUp is partnering with First Place to conduct the first comprehensive housing analysis of this scope in our region. As project managers, we aim to make this process accessible and accommodating for all community members, especially those who are overwhelmed and/or feeling unheard. We are also dedicated to securing funding to cover associated costs of this analysis and keeping this initiative on schedule, so that our final report is ready before the end of the year. Please visit [First Place's website] to review their work with other regions

We are proud to be the first region in NYS to participate in this national initiative! Our region-specific final report will create the most significant impact for us locally, at least initially. However, being part of this project goes beyond Rochester. It is an opportunity to contribute to the greater good by providing data that will inform collective advocacy efforts nationwide. This is an exciting opportunity, and we would be honored for you to join us!

Let your voice be heard.

Participate in an Educate & Empower survey session.

1. Tuesday, June 4, 2024, 2 - 5 pm, Virtual (Zoom)

2. Wednesday, June 5: 10 am - 1 pm, In-person (Golisano Autism Center Large Conference Room)

3. Saturday, June 8: 2 - 5 pm, Virtual (Zoom)

4. Tuesday, June 11: 3 - 6 pm, In-person (GAC Large Conference Room)

5. Wednesday, June 12: 12 - 3 pm, In-person (GAC Large Conference Room)

6. Thursday, June 13: 6 - 9 pm, Virtual (Zoom)

7. Saturday, June 15: 2 - 5 pm, In-person (GAC FLA Blue Classroom)

8. Tuesday, June 18: 3 - 6 pm, Virtual (Zoom)

9.Thursday, June 20: 6 - 9 pm, In-person (GAC FLA Blue Classroom)

10. Tuesday, June 25: 6 - 9 pm, Virtual (Zoom)

Sign-up here:


Watch the Recorded Survey Session

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How to register:

REGISTER here for the session of your choice.

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